Cystic Fibrosis and You

Cystic Fibrosis and You

Y.G. Korneluk
N.E. MacDonald
M. Cappelli
P.J. McGrath
C.E. Heick
Illustrated by Kyla MacDonald
Copyright Date: 1996
Pages: 64
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  • Book Info
    Cystic Fibrosis and You
    Book Description:

    CF and You offers sensible advice on dealing with CF clinic staff, coping with school physiotherapy, and discussing CF with friends and family. In response to concerns voiced by adolescents with CF, this revised edition tackles issues such as sexuality and personal relationships unique to people with CF. Also included is a section dealing with the transition to adult CF clinic care. This book is designed primarily for teens. However, families, clinicians and others whose lives are touched by CF will benefit from this combination of medical information and personal guidance. This new edition explains recent developments in the understanding and treatment of CF such as the discovery of the CF gene, CF carrier testing, and new respiratory and digestive therapies. Comprehensive and accessible, the volume also includes an expanded glossary of medical terms.

    eISBN: 978-0-7735-7402-1
    Subjects: Health Sciences

Table of Contents

  1. Front Matter
    (pp. i-ii)
  2. Table of Contents
    (pp. iii-vi)
    (pp. vii-vii)
    (pp. viii-viii)
      (pp. 3-6)

      Cystic Fibrosis (CF) is an inherited condition affecting approximately 1 in every 2000 children born in Canada. The effects of CF primarily involve the function of the exocrine glands. The exocrine glands are glands that secrete their products outside the body and on the surface of internal organs via ducts. Tears, mucus, sweat, and digestive juices are all examples of substances secreted by exocrine glands. CF causes these glands to produce abnormally thick and sticky secretions. This causes problems in the respiratory and digestive systems. The extent to which each system is involved varies from person to person. Thus, the...

      (pp. 7-13)

      In order to live, each cell of the body needs to take in oxygen and get rid of carbon dioxide. This process is called respiration. Respiration begins when air is taken into the nose and mouth and then passed through the trachea into the lungs. Once in the lungs, the air enters a network of increasingly smaller tubes, the bronchi and the bronchioles, which end in millions of small air sacs called alveoli. Oxygen moves across the alveolar wall in order to be taken up by the body. Air moves in and out of the lungs due to the contraction...

      (pp. 14-19)

      Digestion is the process whereby food is broken down into particles small enough to pass through the intestinal cells, where they are taken up by the bloodstream and then delivered to individual cells in the body.

      Normally, when food is eaten, it activates the pancreas and causes it to secrete digestive enzymes into the small intestine. Once the food reaches the small intestine these enzymes begin to break down the food into particles small enough to be absorbed and used by the cells of the body.

      In 85% of patients with CF, the secretions that carry the digestive enzymes are...

      (pp. 20-28)

      In addition to new drugs, developments are ongoing in the area of gene therapy. Gene therapy involves the placement of normal genes into tissue that is affected by the disease, such as the pancreas or the lungs. For example, researchers are experimenting with ways to inhale healthy versions of the CF gene into the lungs inside special transport molecules called liposomes or inside genetically engineered viruses. The goal is to stimulate the development of normal cells in order to prevent the effects of CF. Research using gene therapy with mice and rats has been encouraging, but it is still in...

    (pp. 31-47)

    Let’s be honest, CF is a serious disease. You will experience problems because of the time needed for therapy, hospitalizations, clinic visits, and medications. Sometimes you will feel quite different from other people your age. BUT people with CF are normal. They have friends. They have enemies. They go to school. They work. They go out. They have good times. They have bad times. They have disagreements with their parents. They share good times with their families...

    Some people are reluctant to discuss their illness, while others feel comfortable talking about CF. Many young people are afraid that telling others...

    (pp. 48-48)

    Numerous physical, intellectual, social, and emotional changes occur during adolescence. These changes are experienced by adolescents with and without CF. Some of the bodily changes that you will experience are directly influenced by CF. CF may also indirectly influence how you feel about becoming independent, sexuality, career choices, and other personal issues. These feelings are normal.

    You may have questions about issues that have not been addressed in this booklet. The staff members at the CF clinic are sensitive to these issues, but it is up to you to let them know about the issues that concern you.

    a a...

    (pp. 49-54)
  9. Back Matter
    (pp. 55-56)