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I Can't Remember

I Can't Remember: Family Stories of Alzheimer's Disease

Esther Strauss Smaller
Foreword by Kathleen O’Brien
Copyright Date: 1997
Published by: Temple University Press
Pages: 136
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  • Book Info
    I Can't Remember
    Book Description:

    I Can't Rememberis an intimate photo essay of four families and their process of coping with Alzheimer's disease -- a process of coming to terms with the practical and emotional consequences of a disease that changes the entire family dynamic. Family members tell their stories of first denying that their loved one cold be suffering from Alzheimer's, then dealing with the changing relationships among family members and the intensifying emotions, as old family troubles are stirred up and new feelings of despair and love appear.Photographs and personal narratives are woven together to show both the unpleasant and the beautiful sides of the struggle for connection between spouses and across generations. Smoller has a gift for capturing people as they interact, whether it's arguing around the kitchen table or dancing cheek to cheek.Each family's story is different, but all four families share common pain and frustration. A highway patrolman who has early onset Alzheimer's describes what it is like to have Alzheimer's. His wife tells a parallel story of life together after hearing the diagnosis. A daughter gives the following account of her mother: "I though that it would be helpful if mother spent time in my home in Colorado. Before this visit, I was in denial, convinced that she suffered from depression and not Alzheimer's disease. ... On the plane trip to Colorado, I was brought into the stark, cold reality that Mom had Alzheimer's. She did not know where she was or where she was going. Upon arrival, she did not recognize my home, although she had visited me numerous times in the past. She tried sleeping in the bathtub the first night."Another daughter relates that she was unaware of the onset of Alzheimer's in her mother, because her mother was such a "wonderful actress." Eventually the memory problems were no longer confined to where things belonged in the kitchen, but extended into driving off at random, driving in circles in a parking lot in the middle of the night or as much as 75 miles away from home.I Can't Remembergives an intimate glimpse into the hearts and minds of caregivers and patients. Supportive social networks are essential for healthy life. This book provides the impetus caregivers need to develop contacts that can provide support. Smoller offers a glimpse of the frustration and losses faced by those who deal with Alzheimer's, as well as the potential to transcend those losses -- even is only for a time -- through love and hope.

    eISBN: 978-1-59213-853-1
    Subjects: Public Health

Table of Contents

  1. Front Matter
    (pp. 1-8)
  2. Table of Contents
    (pp. 9-10)
  3. Foreword
    (pp. 11-14)
    Kathleen O’Brien

    To speak of Alzheimer’s disease, one must talk about families. The disease affects every member of the family as they confront the physical, emotional, and financial demands of caregiving. Living with Alzheimer’s means watching someone you love slowly become someone else … a person who does not recognize her children, or remember what he did an hour ago.

    For the individual, the disease is frightening. Suddenly you do not remember where you are or where you were going. As the disease progresses, confusion and disorientation become the norm.

    Living with Alzheimer’s disease means facing challenges with courage. Once a diagnosis...

  4. Preface
    (pp. 15-20)
  5. A Daughter’S Dilemma
    (pp. 21-56)

    Mom is eighty-six years old and is in the third stage of Alzheimer’s disease. I first recognized a change in Mom about ten years ago when she became emotionally volatile. My dilemma is: How much responsibility do I have for Mom’s care while maintaining my own family life?

    I am a fifty-two-year-old married woman raising three teenage boys. My career is in clinical psychology, and I have a Ph.D. in gerontology. I seem to be the logical one to coordinate her care, since I am her only daughter and have the knowledge of Alzheimer’s disease. But I left my parents’...

  6. In Jim’s Own Words
    (pp. 57-72)

    Q: You were telling me what it was like for you to have Alzheimer’s, yesterday.

    A: Oh, yesterday, yesterday.

    Q: Or whenever it was.

    A: The hardest thing in the world … it, just drove me crazy, ah, crazy. And it was just … and I, ah. There’s times that I didn’t even know where I was at. And that’s what really gets me there. And, ah … now, it’s, you know, there’s, there’s good days and there’s bad, bad days.

    Q: Oh. What are the good days like?

    A: The good days, it’s ah. There’s days that it’s just...

  7. Jim’s Wife Sherry’s Story
    (pp. 73-90)

    Jim’s boss was concerned that maybe Jim had a brain tumor. We both worked for the Missouri Highway Patrol. Jim began as a state trooper when he was eighteen years old. I followed after our marriage to work in the office.

    At age fifty-two, Jim started to show signs of something not being right. For months we went to doctor after doctor. “Well, I think it’s stress.” “Well, I think it’s nerves.” “No, I think it’s this.” “No, I think it’s that.” I wish they could make the diagnosis sooner so we don’t have to be shuffled around month after...

  8. Jean’s Story
    (pp. 91-126)

    My husband, Art, and I had been living in Seattle when we first suspected something was wrong with Mother. We had returned to St. Louis, where I grew up, for Christmas. When we told Mother that we would be coming, she began to plan a number of activities. She was very social. She loved company. She loved to entertain. Christmas was always a wonderful time in her home even though I was an only child. When we arrived in St. Louis, both Art and I were very aware that there was something wrong. Mother’s personality seemed to be changing; her...

  9. Useful Organizations
    (pp. 127-130)
  10. Suggested Resources
    (pp. 131-134)